Acute Lymphoblastic Leukaemia – A Wife’s Perspective Part 5

Life after treatment

You can read part one of this blog for Leukaemia Care here

Read part two here.

Read part three here.

Read part four here.

Life after cancer treatment also had its challenges. We were emotionally distant from each other because we had both been so focussed on our own paths. We had to work hard to lessen the gap, both on a personal level and as a couple. We have both tried to block the horrendous year of treatment out of our minds; I just can’t bear to go back there, watching the man I love in pain, fighting with everything he had to survive.

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Acute Lymphoblastic Leukaemia – A Wife’s Perspective Part 3

On the up

You can read part one of this blog for Leukaemia Care here

And read part two here.

Somehow, against the odds, Martin pulled through. He had no memory from when the infection really started to take hold, or of being moved up to the intensive care ward. In some ways this was a blessing, but it was also very confusing. Doctors and nurses would pop in and say how pleased they were to see him, and he wouldn’t have a clue who they were. I would then have to explain what part they had in saving his life. Martin’s muscles had deteriorated from the two weeks of being bed bound, which meant rebuilding his strength, and he was also still fighting fevers which meant hourly observations and little chance to recuperate. Continue reading “Acute Lymphoblastic Leukaemia – A Wife’s Perspective Part 3”

Acute Lymphoblastic Leukaemia – A Wife’s Perspective Part 2

Hitting rock bottom

You can read part one of this blog for Leukaemia Care here.

As seems to be the way with treatment for acute leukaemia, Martin quickly started another intense course of treatment as an in-patient, aimed at finally achieving remission. It all went well initially but then, two weeks in, Martin got a bad infection which over the following days progressed into sepsis and pneumonia. I knew that he had been deteriorating for days but I didn’t realise how bad it was until the morning when I went into hospital and found him delirious. There was a sense of urgency about him and it was hard to make sense of what he was saying but he kept repeating how sorry he was and to tell the children that he loved them. In my mind this was him saying goodbye!

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Acute Lymphoblastic Leukaemia – A Wife’s Perspective Part 1

As part of Carer’s Week I have written a blog for Leukaemia Care sharing my experiences during my husband’s treatment for Acute Lymphoblastic Leukaemia in 2017. It has been incredibly challenging to write due to the personal nature of the content and the suppressed memories that it brought back. The resulting blog ended up being too lengthy to release as one post so it has been split up into 5 sections to release throughout Carer’s Week.

Part 1 covers the diagnosis.

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My Story

Anyone who has watched reality TV shows knows that you don’t get anywhere unless you have a sob story. I have always been relatively lucky and have managed to avoid misfortune. I am married to someone I love, have two great kids, a fulfilling job and I live in Cornwall, a mile or so from my favourite beach. Life was pretty good until my husband started to feel unwell in September 2016. This led to a series of trips to the doctor, lots of tests and head scratching and finally to a diagnosis of Acute Lymphoblastic Leukaemia on 29 December 2016, aged thirty-six.

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